Leadership

Medical Advisory Board

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Florian Eichler, MD

Learn more about Dr. Eichler →

Robert F. Sidonio, Jr., MD, MSc.

Learn more about Dr. Sidonio →

Rebecca Spencer, MD, PhD

Learn more about Dr. Spencer →

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Julie Cohen, ScM, CGC

Learn more about Julie →

Rebecca McClellan, MGC, CGC

Learn more about Rebecca →

Jamie Kostialik, MS, CGC

Learn more about Jamie →

Board of Directors

Emma Bliss

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President

Learn more about Emma →

Emma Hayes

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Treasurer

Learn more about Emma →

Julia Apodaca-Lane

Learn more about Julia →

Mita Dhullipala

Learn more about Mita →

Mindy Cameron

Learn more about Mindy →

Liz Kennerly

Learn more about Liz →

Audrey Russell

Learn more about Audrey →

Amy Englert

Learn more about Amy →

Michelle Erskine

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Vice President

Learn more about Michelle →

Tess Nelson

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Program Lead

Learn more about Tessa →

Jade Day

Learn more about Jade →

Jennifer Krafchik

Learn more about Jennifer →

Staff

Taylor Kane

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Executive Director

Learn more about Taylor →

Volunteer Leadership Team

Sydne Pantaleon

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Brand Ambassador

Learn more about Sydne →

Carrier Advisory Committee

Katie Marino

Adrenoluekodystrohy - USA

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April Bizzell

Chronic granulomatous disease - USA

Autumn Prince

Ornithine transcarbamylase deficiency - Canda

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Noelia Buniva

Adrenoleukodystrophy - Argentina

Anna Torrey

Adrenoleukodstrophy  - USA

Shellye Horowitz

Hemophilia  - USA

Frani Broussard Denenburg

Adrenoleukodystrophy - USA

Patricia Miletto

Aarskog syndrome - USA

Ann Kendall

Hemophilia  - USA

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Ruth Gutierrez

Adrenoleukodystrophy  - USA

Eilidh Stewart

Fabry disease - Scotland

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Sarah Tong

Adrenoleukodystrophy - USA

Laurie Hayes

Adrenoleukodstrophy  - USA

Janisse Jaimeyfield Gass

Adrenoleukodystrophy - USA

Holly Rausch

Adrenoleukodystrophy - USA

Deb Jennsen

Duchenne muscular dystrophy - USA

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Please note: The information provided on this site is intended for your general knowledge only and is not a substitute for professional medical advice or treatment for specific medical conditions. You should not use this information to diagnose or treat a health condition without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions  you may have regarding your condition.