Leadership

Medical Advisory Board

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Florian Eichler, MD

Learn more about Dr. Eichler â†’

Robert F. Sidonio, Jr., MD, MSc.

Learn more about Dr. Sidonio â†’

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Julie Cohen, ScM, CGC

Learn more about Julie â†’

Board of Directors

Taylor Kane

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President

Learn more about Taylor â†’

Emma Bliss

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Vice President

Learn more about Emma â†’

Michelle Erskine

Learn more about Michelle â†’

Carrier Advisory Committee

Katie Marino

Adrenoluekodystrohy - USA

April Bizzell

Chronic granulomatous disease - USA

Autumn Prince

Ornithine transcarbamylase deficiency - Canda

Noelia Buniva

Adrenoleukodystrophy - Argentina

Anna Torrey

Adrenoleukodstrophy  - USA

Shellye Horowitz

Hemophilia  - USA

Frani Broussard Denenburg

Adrenoleukodystrophy - USA

Patricia Miletto

Aarskog syndrome - USA

Ann Kendall

Hemophilia  - USA

Ruth Gutierrez

Adrenoleukodystrophy  - USA

Eilidh Stewart

Fabry disease - Scotland

Sarah Tong

Adrenoleukodystrophy - USA

Laurie Hayes

Adrenoleukodstrophy  - USA

Janisse Jaimeyfield Gass

Adrenoleukodystrophy - USA

Holly Rausch

Adrenoleukodystrophy - USA

Deb Jennsen

Duchenne muscular dystrophy - USA

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