Leadership

Medical Advisory Board

Florian Eichler, MD

Learn more about Dr. Eichler →

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Robert F. Sidonio, Jr., MD, MSc.

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Rebecca Spencer, MD, PhD

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Julie Cohen, ScM, CGC

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Rebecca McClellan, MGC, CGC

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Jamie Kostialik, MS, CGC

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Board of Directors

Emma Bliss

President

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Emma Hayes

Treasurer

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Kristy McCracken

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Samantha Coover

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Jessica Branum

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Liz Kennerly

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Jennifer Krafchik

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Amy Aikins

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Amy Englert

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Michelle Erskine

Vice President

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Tess Nelson

Program Lead

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Jade Day

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Staff

Taylor Kane

Executive Director

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Volunteer Leadership Team

Sydne Pantaleon

Brand Ambassador

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Carrier Advisory Committee

Katie Marino

Adrenoluekodystrohy - USA

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April Bizzell

Chronic granulomatous disease - USA

Autumn Prince

Ornithine transcarbamylase deficiency - Canda

Noelia Buniva

Adrenoleukodystrophy - Argentina

Anna Torrey

Adrenoleukodstrophy - USA

Shellye Horowitz

Hemophilia - USA

Frani Broussard Denenburg

Adrenoleukodystrophy - USA

Patricia Miletto

Aarskog syndrome - USA

Ann Kendall

Hemophilia - USA

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Ruth Gutierrez

Adrenoleukodystrophy - USA

Eilidh Stewart

Fabry disease - Scotland

Sarah Tong

Adrenoleukodystrophy - USA

Laurie Hayes

Adrenoleukodstrophy - USA

Janisse Jaimeyfield Gass

Adrenoleukodystrophy - USA

Holly Rausch

Adrenoleukodystrophy - USA

Deb Jennsen

Duchenne muscular dystrophy - USA