WE ARE NOT "JUST CARRIERS"

Uniting, Supporting & Empowering Females with X-Linked Disorders

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check out the results of our X-linked carrier survey!

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we are here. . .

add yourself to RTG's global network of X-linked carriers

Key

 Aarskog Syndrome

Adrenoleukodystrophy (ALD)

 Alport Syndrome (XLAS)

Barth Syndrome (BS)

Becker Muscular Dystrophy (BMD)

 Börjeson-Forssman-Lehmann syndrome (BFLS)

Chronic Granulomatous Disease (CGD)

 Coffin-Lowry Syndrome (CLS)

 Creatine Transporter Deficiency (CTD)

Duchenne Muscular Dystrophy (DMD)

Fabry Disease

FG1 Syndrome (FG1)

 Fragile X Syndrome (FXS)

 Hemophilia

Hunter Syndrome

 Hyper IgM Syndrome (HIGM)

● Ichthyosis (XLI)

● Kennedy's Disease (KD)

 Lesch-Nyhan Syndrome (LNS)

L1 Syndrome

Menkes Disease

 Myotubular Myopathy (MTM)

Pelizaeus-Merzbacher Disease (PMD)

● Ornithine Transcarbamylase Deficiency (OTC)

TARP Syndrome

 Urea Cycle Disorder (UCD)

X-Linked Dilated Cardiomyopathy (XLDCM)

X-Linked Retinitis Pigmentosa (XLRP)

X-Linked Severe Combined Immunodeficiency (X-SCID)

NEW PARTNERSHIP! ALD Connect

Peer Mentor Program

The purpose of the ALD Connect Peer Mentor Program is to connect with individuals with ALD/AMN, family members, or caregivers with other ALD Connect mentors so they can form a relationship that is maintained with encouragement, respect and confidentiality. The main goal of this program is to provide easier access and increased collaboration between members of the ALD Connect community.

Click here.

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Please note: The information provided on this site is intended for your general knowledge only and is not a substitute for professional medical advice or treatment for specific medical conditions. You should not use this information to diagnose or treat a health condition without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions  you may have regarding your condition.