WE ARE NOT "JUST CARRIERS"

Uniting, Supporting & Empowering Females with X-Linked Disorders

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registry instructions

check out the results of our X-linked carrier survey!

click on the image for a larger view!
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listen on Apple Music & Spotify!

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we are here. . .

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NEW PARTNERSHIP! ALD Connect

Peer Mentor Program

The purpose of the ALD Connect Peer Mentor Program is to connect with individuals with ALD/AMN, family members, or caregivers with other ALD Connect mentors so they can form a relationship that is maintained with encouragement, respect and confidentiality. The main goal of this program is to provide easier access and increased collaboration between members of the ALD Connect community.

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Click here.

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Our Partners

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