WE ARE NOT "JUST CARRIERS"
Uniting, Supporting & Empowering Females with X-Linked Disorders
we are here. . .
add yourself to RTG's global network of X-linked carriers
Key
● Aarskog Syndrome
● Adrenoleukodystrophy (ALD)
● Alport Syndrome (XLAS)
● Barth Syndrome (BS)
● Becker Muscular Dystrophy (BMD)
● Börjeson-Forssman-Lehmann syndrome (BFLS)
● Chronic Granulomatous Disease (CGD)
● Coffin-Lowry Syndrome (CLS)
● Creatine Transporter Deficiency (CTD)
● Duchenne Muscular Dystrophy (DMD)
● Fabry Disease
● FG1 Syndrome (FG1)
● Fragile X Syndrome (FXS)
● Hemophilia
● Hunter Syndrome
● Hyper IgM Syndrome (HIGM)
● Ichthyosis (XLI)
● Kennedy's Disease (KD)
● Lesch-Nyhan Syndrome (LNS)
● L1 Syndrome
● Menkes Disease
● Myotubular Myopathy (MTM)
● Pelizaeus-Merzbacher Disease (PMD)
● Ornithine Transcarbamylase Deficiency (OTC)
● TARP Syndrome
● Urea Cycle Disorder (UCD)
● X-Linked Dilated Cardiomyopathy (XLDCM)
● X-Linked Retinitis Pigmentosa (XLRP)
● X-Linked Severe Combined Immunodeficiency (X-SCID)
NEW PARTNERSHIP! ALD Connect
Peer Mentor Program
The purpose of the ALD Connect Peer Mentor Program is to connect with individuals with ALD/AMN, family members, or caregivers with other ALD Connect mentors so they can form a relationship that is maintained with encouragement, respect and confidentiality. The main goal of this program is to provide easier access and increased collaboration between members of the ALD Connect community.
Click here.
